There are nearly one million people in the U.S. living with Parkinson’s disease (PD) and that number is expected to rise.
Although efforts are underway to learn more, the full impact of Parkinson’s on the Black community is unknown because of their historical underrepresentation in research and in the healthcare system overall. To date, research shows that African Americans are diagnosed later in the disease, and once diagnosed are less likely to receive care from PD medical professionals and specialists. In addition, they are also less likely to receive recommendations and referrals for treatment and advanced therapies as compared to white people with PD.
BlackDoctor.org created this book in partnership with the Parkinson’s Foundation to ensure that Black people living with Parkinson’s are aware of the resources and options for care that specifically consider their unique experiences and needs. The Black community may face additional challenges managing this disease including awareness of symptoms associated with Parkinson’s disease and the health and economic inequities that present barriers to accessing quality care.
These barriers can negatively influence health outcomes and quality of life for people with Parkinson’s and their caregivers. However, initiatives are underway to improve this by conducting more targeted and inclusive research, studying health disparities, and promoting the awareness and disclosure of symptoms, so that we can more accurately diagnose PD and improve outcomes in the Black community.
This e-book is for anyone affected by Parkinson’s disease: those concerned about early symptoms, those newly diagnosed, those living with the disease, and those who help care for a loved one. In this book, you will find an overview of PD – its causes, symptoms, and treatments – as well as advice for navigating the PD journey and steps to take today to live your best life. Each chapter also provides links to articles, videos, webpages, and other resources to help you or your loved one with Parkinson’s.
The book is designed to be a resource guide as you take control of your PD journey, so that you feel empowered to talk to your doctor and find the care that you deserve to live well with the disease. With the help of PD professionals and the support of your network, you can slow the progression of your Parkinson’s symptoms and enjoy a better quality of life.
To find more resources and support, call the Parkinson’s Foundation Helpline at 1-800-4PD-INFO (1-800-473-4636) to speak with a Helpline specialist or visit
Parkinson.org
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